Inclusion on this list is not an endorsement.
Click letter above to "jump down" the page to that letter.
A
Alzheimer's Association
The ALS Reporter
Comprehensive Resource, including support group listings.ALS Information Discussion Groups and Newsgroups
Other Related Sites |
Ankylosing Spondylitis Center
National Ataxia Foundation
Euro-Ataxia
A-T in Touch - U.K.
CHADD Homepage
Center for the Study of Autism
B
C
National Cancer Institute
National Childhood Cancer Foundation
Candlelighters Childhood Cancer
Foundation
Y-ME: National Organization for
Breast Cancer Information and Support
National Alliance of Breast Cancer
Organizations
CanSearch
: A guide to cancer resources on the Internet, courtesy of the National Coalition for Cancer Survivorship.Carbohydrate Deficient Glycoprotien syndrome Parent Forum
CMTnet
Chromosome Deletion Outreach
Includes abnormalities involving inversions, duplications, rings, duplications, and translocations
Chromosome 4
Wolf-Hirschorn Syndrome
: 4p- Parent Network HomepageChromosome 5
Cri du Chat Syndrome Support Group (Culcheth, England)
Chromosome 11
The Fragile Website
Chromosome 13
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
Chromosome 16
Links to Chromosome 16
Center for Human Genome Studies
- goals include high quality DNA sequencing and assembly of complete high-resolution maps of chromosome 16 and regions of chromosome 5.
Los Alamos National Laboratory - Center for Human Genome Studies - goals include high quality DNA sequencing and assembly of complete high-resolution maps of chromosome 16 and regions of chromosome 5.
Chromosome 17
Smith-Magenis Syndrome
: PRISMSChromosome 18
Chromosome 18
Registry & Research SocietyX Chromosome
Klinefelter Syndrome & Associates
Children's Craniofacial Association
Cri Du Chat Syndrome
Support Group - U.K.Cystic Fibrosis-WWW Online
Online archive of CF information. A must visit site.Cystic Fibrosis FoundationD
American Diabetes Association
Association for Children with Down Syndrome
Little People of America (LPA)
E
Epilepsy Canada
Epilepsy Foundation of AmericaF
G
MGH Gaucher Webpage
Glaucoma
Research FoundationThe Glaucoma FoundationH
The Congenital
Heart Disease Resource Page
Congenital Heart Defects - diagrams
Iron Overload Diseases Association, Inc.
Hemophilia Homepage
Huntington's Disease Society of America
Hydrocephalus Association
I
Infertility
ResourcesThe Fragile Website
K
L
Leigh's syndrome
: at UMDFNational Lymphedema Network
M
SANDS - a support group for parents who experience miscarriage, stillbirth,
or neonatal death.
Hygeia: An Online Journal for Pregnancy
and Neonatal Loss. "A new resource for women's health and healing."
Maintained by Michael Berman, M.D.
MS-Direct:Multiple Sclerosis Support
Myasthenia Gravis Links
N
National Neurofibromatosis Foundation
Noonan Syndrome Society
U.K.O
P
American Porphyria
Foundation
Porphyria - A patients guide:
Drug lists, diagnosis, management & therapy. By Professor Michael R. Moore at the
Porphyria Research Unit, University of Queensland
The Prader-Willi Connection
Pseudoxanthoma Elasticum (PXE) International, Inc.
P2
S
Scleroderma Research Foundation
Lipomyelomeningocele
Family Support NetworkT
Treacher Collins Family Support Group
U.K.Turner's Syndrome Society of the United States
Turner's Syndrome Society, TexasU
V
Velo-Cardio-Facial Syndrome
Educational FoundationVHL Family Alliance
W
Williams Syndrome
- Canadian Association Williams Syndrome U.S. AssociationX