National Support Groups / Information Sites

Inclusion on this list is not an endorsement.
I list sites of national support groups I have found on the Web and I do not review them for the accuracy of the information they provide. Any information you find should be reviewed with your health care provider for accuracy.

Sites are listed alphabetically by disease/conditon name or disease/condition category.
For example, Marfan Syndrome or Miscarriage are under "M"
If any of these links change, send email to starwalker@snowcrest.net with the new link.


 

Medical News and Alerts

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 FDA Grants Orphan Drug Status to Creatine for Amyotrophic Lateral Sclerosis
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 WCN: Mechanical Cough Assistance Helps Patients With Amyotrophic Lateral Sclerosis
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 Rilutek (Riluzole) Available In Canada For Amyotrophic Lateral Sclerosis
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 DG DISPATCH - AAN: Management of ALS not up to AAN guidelines
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 DG DISPATCH -ANA: Gabapentin Offers Little Benefit In ALS Progression
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 Gene-Reading Problem Linked To Lou Gehrig's Disease
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 Myotrophin Slows Progression Of Lou Gehrig's Disease
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 Potential Test For Lou Gehrig's Disease At Hand
  •  
 Synthetic Steroid Dramatically Reduces Stroke Damage
  •  
 Science Gene Therapy In Mice Delays Onset Of Lou Gehrig's Disease (ALS)


ALS Information
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