National Support Groups / Information Sites

Inclusion on this list is not an endorsement.
I list sites of national support groups I have found on the Web and I do not review them for the accuracy of the information they provide. Any information you find should be reviewed with your health care provider for accuracy.

Sites are listed alphabetically by disease/conditon name or disease/condition category.
For example, Marfan Syndrome or Miscarriage are under "M"
If any of these links change, send email to starwalker@snowcrest.net with the new link.

Click letter above to "jump down" the page to that letter.

A	B	C	D	E	F	G	H	I, I2	J	K
L	M	N	O	P	P2	Q	R	S	T	U
				V	W	X	Y	Z

I

• National Incontinentia Pigmenti Foundation
• Infertility

Infertility Resources
Montreal Institute for Reproductive Medicine

• Iron Overload Diseases Association, Inc.

In

• Intersexed
• Intersex Society of North America-Prepare for an outspoken attitude.
• Intersex Support Group International-Christian Intersex Support Group
• 
   

J

• Jacobsen syndrome

The Fragile Website
11q Research and Resource Group

• Jeune's syndrome: (Asphyxiating Thoracic Dystrophy) Family Support Group

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K

• Kearns-Sayre syndrome (KSS): at UMDF

• ---

• Klinefelter Association, New Zealand
• Klinefelters Syndrome Information-New Zealand
• Klinfelter Syndrome, Meet The People
• KS Information Site
• Klinefelter Syndrome & Associates

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• Klippel-Feil Syndrome Network
• Klippel-Trenaunay Syndrome Support Group

L

• Lactic Acidosis: at UMDF
• Landau Kleffner syndrome Support Group - U.K.
• Leber Hereditary Optic Neuropathy: at UMDF
• Leigh's syndrome

Leigh's syndrome: at UMDF
People Affected by Leigh's Syndrome Homepage

• Lesch-Nyhan Syndrome: Purine Research Society
• Lethal Infantile Cardiomyopathy (LIC): at UMDF
• United LeukodystrophyFoundation
• Limb Defects at 'The Amputee Homepage'
• Lipomyelomeningocele Family Support Network
• Biliary Atresia & Liver Transplant Network Inc.
• Luft disease: at UMDF
• Lymphedema

National Lymphedema Network
Lymphedema International Network

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