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Klinefelter Syndrome |
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Alliance for Genetic Support Groups
American with Disabilities Act
Council for Disability Rights
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KS SOURCES OF INFORMATION

Dr. W.Kiley (at USC-LAC) tells me in November of 1977 that I
am 70% female and 30% male Physically, Physiologically and Psychologically and he would commit suicide if he had
this condition, to save his family from embarrassment. Some family members also suggested I do the same.
Other family members suggested that they should do it to me.
I suggested to them they they were not the CHRISTIANS they claimed to be.

Since 1978 I
have not seen any family members with the exception of my Mom, my brothers and a couple of
cousins. Everyone else prefers not to know me.
GOD will sort this all out in time or in heaven, whichever comes first..

Instead I asked
GOD that if it was HIS will then to send the
Holy Spirit before me and BULLDOZE a pathway for me to
get medical treatment for it., because I preferred to be only
ONE gender and the one it was easiest to become.
I tried male hormones in 1971 and I feminized on them,
actually they kick started my 2nd puberty...into a
feminine
phenotype. I piled on the pounds where women gain
during
puberty.
The half
life of the Testo was being reduced from injection to
injection and being spilled out of my body. That
means the
GLOMULAR CAPSULES inside the kidneys spilled the
testosterone molecules and they were not
re-uptaked,
instead estrogen was being produced by my liver
and it was
re-uptaked by the kidneys, while the testo was
spilled..
(Yup I sure did a lot of reading to learn this.)
In 1982
I spoke with Dr. Willard Goodwin (UCLA ret.) who
told me then "even if you had kidney and
liver transplants,
how are you going to make the cells respond? GOD
designed you this way for a specific reason."
Which means
that even the majority of the cells of my body did
not
respond to testosterone treatment. This is known
as
PARTIAL A.I.S.
(androgen insensitivity syndrome)
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Stress Anyone?
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1977 |
1973
 
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By this time, I have
seen the XRAYS (1973) taken during a retrograde pyleogram, that show that I have both male
(30%) and female (70%) organs.
Well now I know why I
consider myself both male and female, because my body is. |
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I was
10 years of age. before I went to any type of bible study classes. Dreaming History.
Having Vivid Dreams is like videotaping it as it happens. (I can still remember them, as
though it were yesterday) From
about ages 8-13 (five years total) I had a reoccurring dream which changed slightly each
night. One main thing I learned from the dream. TRUST GOD ALWAYS, because HE was in the
dream. He revealed HIS PRESENCE OF SELF to my mind at age eight, TWO YEARS before I went
to any kind of bible class.
.
In the dream, the devil [ aka Satan ] was attacking me. I saw GOD in my mind (in the
dream) and HE told me that if I would ask HIM for HIS strength, then HE would strengthen
me and (together HE and) I would defeat the enemy.
[Satan -The Devil] The dreams changed
slightly over the years, but each time I asked for God's strength and (together HE and) I
would physically beat up the devil.In the last dream, the devil told me he had me where he
wanted me, then God appeared and carried me away to safety, slamming the 'door in the
devils face'.
There were other instances which were not
dreams. If I wrote them down here, you would not believe me. I would hardly believe me,
but they happened.
In some of my most painful 'trials' after
surgery and after the demerol or morphine no longer worked and remembering what HE told me
in my dreams could I trust in GOD to sing praises to Him.After a period of time (20-40
minutes it would seem) would I hear a voice whisper to me that 'HE would not let me suffer
more than I could endure'. I then passed out and went to sleep. When I awoke, I had no
more physical pain and required no more pain killers.
If I learned one thing, it is to, TRUST GOD
ALWAYS!
So how come us humans have such a short term
memory on The Blessings of GODand such a long term memory on the bad things that happen to
us?
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My
Computer History
It was 1983 and I was playing video games with a friend.
That was the heyday of the Atari 2600 game
machine. A
year later I bought my first computer, a
Commodore 64.
I bought the computer, because I had
volunteered for
every position the church I was going to and
was told ''dont call us, we will call you'' They never did. SO after 9 month, it was
computers.
At first I had a tape drive. Anyone who has
had a tape drive knows how slow they are in comparison to a floppy disk drive. Within a
few months I bought my first 1541 floppy disk drive. The 1541 floppy drive was a single
sided floppy drive. It could only format the diskette to a mere 170 KB.
By Christmas of 1985 the C128 was available
with the 1571 disk drive which had a formatted capacity of 340 KB. A year later the 1581
came out. It used the 3.5'' micro floppy and it had a formatted disk capacity of 880 KB,
which was considered a lot in those days.
.
By 1987 I bought my first 8088 with two floppy drives and a 20 meg HDD with an RLL
controller. The 20 meg drive was formatted to 32 megs. There were a lot of controller
cards available then so you could take a 20 meg drive and "push it" as high as
45megs formatted capacity. I bought my first modem in April 1986. It was a 300 baud modem.
I went "online crazy" and dialed into 83 computer systems in one day in southern
california. My aim was to get a large a list of other bbses as possible. There were about
10,000 BBSES in southern california in those days. My friends and I were on the top 1,000
BBSES in those days.
.
By the Christmas of 1986 I upgraded my modem to a 1200 baud modem and sold off the 300
baud modem. I also subscribed to Compuserve, which was not cheap in those days. They
charged by the BAUD RATE of your modem. 1 hour of time at 300 baud was equal to 30 minutes
of 1200 baud and 15 minutes of 2400 baud.
I dropped compuserve two years later when I
got my 2400 baud modem.
The 2400 baud modem was my mainstay from 1988 until 1994 when I upgraded to a USR
Sportster 14.4k Fax/Modem which came with a subscription to AOL and
access to the internet. AOL's rates were $9.95 per month with 5 free hours of access.
After that them hour's cost you $2.95 per
hour. I was "surfing the net" about 23 hours a month, of which 18 of them hours
cost me $2.95 per hour. While online I learned of other Internet
Provider Services. So in March 1995 I went with NETCOM
Communications.
I figured it had the best deal for me with NO
TIME LIMIT for $19.50 per month. By the time June had rolled around I had subscribed to The
Arlington courseware course. I got weekly emails with lessons to navigate the
internet for an initial cost of $20.00 - a very good deal for the "newbie".
The first three weeks online I downloaded a
course from The Long Beach IBM Users Group BBS at 562-420-1000. It had information on
LYNX, GOPHER, EMAIL, FTP, ARCHIE, VERONICA, JUGHEAD and so forth. It had about 40,000
words, which I read in one week. Within three
weeks I was surfing the net.
At first I visited FTP sites, then GOPHERsites, then I went out onto the WWW with LYNX
in May of 1995- when there were fewer than 800,000 sites on the WWW.
One of theTeachers at Cerritos College asked
me to do some research for her.Using Gopher-Email, and Email, I emailed her over 75
megabytes of textfiles from the internet. One of the Sysops at Cerritos College had told
her that she had unlimited storage.
After 75 megabytes were uploaded he started
asking who and the heck I was that I was emailing her an average of 5 megabytes a day on
topics from Anthropology to Zoology,from Anon FTP to LISTSERV's..
I started with Scott Yanoff's list of web sites
on the internet The first three months I was online thru NETCOM I averaged 10 hours per
day every day of the week. Within 3 month's I was still surfing the internet
around 8 hours per day in 4 hour shifts. One time using FTP mode I went to
ftp.microsoft.comand downloaded 40 megabytes of software of Visual Basic and MS Access
help files. 15,000+ Files available for download from microsoft. |
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Update
5-18-99:
After 4.5 years online, sign with Snowcrest, get a Domain
Name. Now have my DNS hosted at SNOWCREST, for a total online storage capacity of
100 megs and OVER 400 pages.. |
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Update
2000:
Get DSL connection with Snowcrest.
Download speed 1.5 to 2 MG.
Upload speed 380 KB to 490 KB |
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Genetics
We are, according to JEREMIAH 1:5 designed
by GOD. "HE knows us before we were
formed in our
mothers womb."Therefore HE knows what
amount of
DNA that is required to construct each one
of us.When
HE wants to make a male he uses 23 pairs of
chromosomes, ofwhich the 23rd pair has an X
chromatin and a Y chromatin. 46,XY
When HE wants to make a female he uses
23
pairs of chromosomes, ofwhich the 23rd pair
has two
X chromatin's. 46,XXThere are 23 pairs of
chromosomes for a total of 46 chromosomes to
construct a human baby. The mothers egg has
23
chomosomes and the fathers sperm has 23
chromosomes, usually.
Sometimes HE makes variations on male
and
female by constructing people with both male
and
female reproductive organs. In somecases you
get
Intersexed [Hermaphrodite] who have XX but
are male
or female and other times you get XY but who
are
female or male.
Sometimes you get Mosaic's
[47,XXY/46,XY, or
47,XXY/46,XX or 47,XXX/46,XX] or any other
combination. Sometimes the Mosaic is male,
sometimes female and sometimes a Mosaic may
have
qualities of both male and female. A person
with XXY
or XXX has 47 chromosomes instead of 46
chromosomes. They have 3 chromosomes on the
23rd
pair of chromosomes instead of 2 chromsomes.
Thus
the designation is 47,XXY or 47,XXX.
You can learn more of this by visiting http://www.klinefeltersyndrome.org/
If you wish to know more about this, then ask
Professor Almon who
is a Molecular Biologist at SUNY, Buffalo,NY.
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My
"Saved" History
It was the spring of 1963 when I began to wonder for
what purpose God put people here on earth. I
felt that
robots could do all that were were doing, us
humans,
here on earth, but they would just be
machines and
could not know God.
I wondered "How could I know God?"
Could anyone know God. I read in the
Holy Bible,
in Genesis, about Abraham who wasa friend of
God,
Jacob who wrestled the Angel of the Lord and
in
Exodus, Moses who spoke with God. How could
a
mere human being havea relationship with
God, I
wondered...
In April 1963 on a wednesday evening,
about 20
minutes afterthe preacher started preaching,
I got up
from my seat in the pews and ran down the
aisle to the
altar and knelt and asked God to forgive me
of my
wrong doings [sin]. I prayerfully asked HIM
for
salvation thru HIS Son, JESUS.
It was the spring of 1967 when I heard
of the
Baptism of the Holy Spirit. The evangelist
read in the
Acts of The Apostles about the disciples
praying in the
upper room to await the Holy Spirit.Some
people
believe that when you ask Jesus into your
life,
repentingof your sins that you are 'filled
with the Holy
Spirit'. I will not dispute their beliefs,
but I do know for
myself that being 'baptized by the Holy
Spirit' is
probably different that being filled with
the Holy Spirit
when first saved, as mentioned in The Acts
of The
Apostles, Chapter(s)1:5, 2:1-4, 2:17-18.
For me being baptized by the Holy Spirit was akin to
standingin a waterfall like Niagara Falls,
like being filled
with electricity and like as though I was
plugged into GOD.
I knew my feet were on thefloor of the
church I was
standing in, yet in my mind I felt like from
knee's upwards I
was standing before the Throne of God and He
wasless
than 100 feet away and I was praising Him.
I felt in my mind that HE told me that the brain
damage I was born with that I was
healed of it and
that I no lnger needed to take the
medication. My
parents and the doctor were not happy
that I quit
taking the medicine whichI told them
about two weeks
after being healed. Much later an EEC
showed that
indeed the left temporal lobe damage
was no longer
there. The doctors had no explanation
for it.
Seven years after I asked God for
salvation thru HIS
Son Jesus Christ [The Messiah] I began
to enter one
of the most unusual trials you could
ever imagine. This
was in November of 1970.See next
chapter.
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In
November of 1970 I entered St. Francis Hospital of
Lynwoodin Lynwood, Southern
California. The doctor
was pretty sure I hadRhuematoid
Arthritis, but he
wanted to be sure. He told me he
wanted todo a few
days of tests on me. THREE weeks later
I was
dischanrgedand I had an "acute
case of rhuematoid
arthritis". The SED Rate was 65.I
was prescribed 20
mg daily of Prednisone, 150 MG of
Indocin T.I.D.
anda couple of drops of Bella Donna
allegdely to
protect my stomach fromthe medications
I was taking.
Cortisone can feminize you. Usually when that happens you
are withdrawn from the cortisone (to stop
the feminization
process)or are given Testosterone to
countact the
feminization process to reverse it and
maculinize your body.
Unfortunatly the doctor did not know my body
was
intersexed. Then again, neither did I.
The testosterone injections 400 MG injected
once every
TWO weeks proved, via lab tests, that my
body was
dumping the testosteroneand that the
testosterone's "HALF
LIFE" was being reduced by 50% fromone
injection to the
next injection. That somehow I was
feminizing on male
hormones. "OOP"s!" What a
surprise.
So at age 26 I began my second puberty,
feminizing in all
thesecondary places girls feminize when
puberty starts.
How humbling thisshould have been for me a
man, but then
again seeing as I was not surewhich gender I
was: part of
me was happy about it. Another part of me
decided that I
should hide it from everyone, especially my
family.As
ignorant as I was about it; so was my family
doctor.
One and a half years later I was
hospitalized as the R.A.
[rhuematoid arthritis] had burnt out my
right knee to the
point I had to have surgery just so as to
keep the ability to
walk. Dr. Wm Wilsonwas the Orthopedist. He
removed the
knee cap along with tumors and cysts from
within my right
knee. It hurt!
Six months later I had surgery on my left wrist to
alleviatethe pain and inflammation from the
R.A. It had
eaten up part ofone of my wrist bones.
Six months later in June of 1973 I had
bleeding from
mykidneys. So I was referred to a
Urologist, a DR.
Williams. He madethe preliminary
diagnosis of
Klinefelters Syndrome. He said I had
to have a test
known as a cystoscopic exam to xray
the kidneys and
seewhat was going on with them.
I had kidney stones alright. The xrays
also showed up
a few things I had no idea I did have,
like female
organs. Ha ha. God has a sense of
humor. I suppose I
could have cried about it and felt
sorry formyself, but
part of me had always wanted to be a
female instead
ofa male. I knew though that I would
have to keep
quiet about it. I knew this because
while I was still in
the hospital a nurse came to meand she
told me how
DR. Willaims had repaired her vagina.
Now whywould
a nurse tell me about her personal
female problems?
When I mentioned that to DR. Williams
he had me
moved from a ward offour beds to a
private room.
Since then the drs. have tried to keep
mein private
rooms. Sometimes a private room is
nice, sometimes
not so nice.
A year later I had surgery on my right
wrist and the
Superintendent from work called to let
me know that I
should look foranother job, because if
the company
took me back their BLUE CROSS
insurance rates
would skyrocket an addtional $10,000
per month.So I
began looking for work else where with
a cast still on
my right arm.
A few years later the R.A. caught up
to me at work as
the boss saw me limping while I
walked. My knee was
so swollen that my workpants were
tight around me
leg at the knee. He came over to where
I was an told
me that no job was worth killing
myself over and that I
should go off on disability. I went to
see my
Orthopedist. He took one look at my
knee and said I
needed to have a total right knee
replacement.Due to
under-insurance from work I would have
had to pay
$700.00 "upfront" to the
doctor to have the knee
surgery. I declined the surgery. The
doctor said I had
no choice but to go onto disability.
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I had
major surgery. The odds on surviving the
operation were50-50 for it, but they were
100%
against me if I had no surgery. Perotinitis
is not very
forgiving. Since
that day in Jan 1977, I have had over 20
more surgeries on various joints and
internal organs. I
have since had two total jointreplacements,
had a
broken leg bolted back together from the
inside, and
had both the male and female organs removed.
Hermaphrodites tend to get cancer of
the
reproductive organs. So you have a choice,
lose them
and live or keep them and die. When some of
them
were removed a few years ago, the doctor
told me that
he found cysts and tumors [benign] mixed in
with the
organs and that I had developedperotinitis.
The doctor
told me that he removed 50% of my large
colon and all
of my female organs, to save my life.
Within two years some of my female
organs grew
back and I am not so sure who was more
surprised,
my Ob/Gyn or me. None of the male organs
grew
back.
[Thank God, best to be only 1 gender.]
Within the past 4 years, much has happened.
My close friend, Jan Tanner died from Cancer. She said her right side below her shoulder,
above the bottom rib, had hurt for a a few months. When she went into the
drs. office,
tests revealed a large tumor, below her right lung penetrating the diaphragm and sitting
on top of the Adrenal gland of the right kidney.... The doctors told her that the tumor
could not be removed (not
covered by the insurance) and so used chemotherapy.....which she said she could not stand the
side affects of....She died Jan 21st 1997.
Why did I not pray for her to be healed of
the cancer? Because each time I tried to do so, I felt that GOD was telling me to pray for
her to have spiritual strength and that is exactly what I did......and that is what she
received.
I think the biggest hurt came when my friend
Ron Kagan died. So far as I know he was not saved. He was the first person I ever cried
[mourned] over who died. I had spoken with ron on the phone about 3 weeks befire he died
and tried speaking to him about salvation, but he said he was a "Capitalist".
After that I felt that God was distancing me
from ron, but I didn't know why. The Tuesday before the Saturday that ron died on, I sent
ron an email on the dead sea scrolls, concerning that portion that mentioned the Messiah.
I had back to back dreams, one in the evening and the next morning of the day I saw on
the morning news that he had been killed in a motorcycle accident. The dreams consisted of
''a circle of light, with the light comming down from above, me standing in them middle of
the circle, seeing Ron standing at the edge of the circle, in darkness.The look on his
face was one of amazment, as though his thoughts were 'Oh my god! It is true, JESUS REALLY
IS THE SAVIOUR'
The thoughts that ran through my mind were,
''we lost one''. Once you hve repented of your sins and have asked Jesus to come into your
life, HE resides in you, thus the term 'we'.
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Acts
Chapter 1:5
For John truly baptized with water; but you shall
be baptized with the Holy Ghost not many days hence. Acts Chapter 2:1-4
And they were all filled with the Holy Ghost, and began to speak with other
tongues, as the Spirit gave them utterance. (speech)
Acts Chapter 2:17-18
And it shall come to pass in the last days, said God, I will pour out
my Spirit upon all flesh: and your sons and your daughters shall
prophesy, and your young men shall see visions and your old men shall dream dreams. And
on my servants and my handmaidens I
will pour out my Spirit; and they shall prophesy.
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p.s.-addendum.
The Pastor at the church I went to in Long Beach, also worked with
the Long Beach Police Dept. as a Police Chaplain. He told me he saw
all kinds of people with Intersexed conditions and that they were not
Christians and that they tended towards hating Christians.
I told him
that I thought I understood why, because people who
CLAIM
to be Christians tend to
discriminate against that which they do not understand, especially
those who have never had any 'trials' , FORGETTING WHAT JESUS forgave them
of. Many claim it, but less actually do it.
1) You get it from
your parents-mainly the male parent. Beating you up as you grow up because you do not
behave in either the masculine behavior of a male or in the female behavior pattern of a
female. So you may ''yoyo'' back and forth.
2) You get it from the medical
professionals when they learn of it, and they will. Then the medical
professionals tromp on you emotionally, blaming you for it.
3) You get it from ignorant people, even
Pastors.. I told my Pastor by accident, but that Pastor
turned out to be serving GOD, not
serving his flesh. Fleshly responding Christian people ''lump'' Intersexed
/ hermaphrodites into the homosexual category, most likely due to ignorance.
4) You get it from people, because they think
that if your body is Intersexed, then so is your sexuality, thus you have to be
homosexual, because their minds cannot conceive of a person with both male and
female organs as being heterosexual.
- [Simple-You
use your male organs with females when you live as a male, and your female organs with
males when you live as a female. That is how you remain heterosexual.]
Such ignorance still abounds even in the
medical profession. Some think it is funny. Some think they have discovered it and so then
then proceed, like the little kids they still are: to tell all their peers and try to
''document'' you.
If you meet a doctor like that,
leave.......ASAP or get a very good lawyer...
5) You tend to get cynical over the years. I
did.
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