Old Page Klinefelter Syndrome

 

Alliance for Genetic Support Groups

American with Disabilities Act

 Council for Disability Rights

 


KS SOURCES OF INFORMATION 

 Genetic -Support Groups

If you have or have a child with a birth defect, whether physical or developmental (as if there were a difference) then you KNOW how society and medicine has  treated you or your child. 

If you DO NOT have a child with a birth defect, NOR have a relative or neighbor
 with a birth defect or KNOW SOMEONE, then you probably ARE PART OF
THE PROBLEM, instead of the solution, unless you are educated concerning XXY. 

                "The SOLUTION is 
                   the end of IGNORANCE
                   which causes FEAR
                  which can be overcome with EDUCATION. "
                                        Quote by Jamie Holmes 1999

The pages on this website specifically deal with Klinefelters Syndrome

 

The genetic pre-disposition towards a genetic condition may be affected  by hormones in a person. Just so, those with KS, can avoid the usual conditions by Hormonal Replacement Therapy (HRT). 

This way the DNA Blueprint gets a new interpetation, thus developing their reproductive organs in the presumed normal manner of development. NO TREATMENT (HRT) = DEVELOPMENT OF Klinefelters Syndrome.

   
  An Internet mailing list has been created for the exchange of information and support of Klinefelter Syndrome. This is a MODERATED discussion list, created for you to exchange any ideas, information, news, comments, gripes, fears, or whatever, related  to Klinefelter Syndrome.

 

  Klinefelter Syndrome ADULTS. XXY+Adults Listserv 

           Klinefelter Syndrome KIDS XXY+Peds Listserv 

           Klinefelter Syndrome     XXY List

           XXY Network Listserv

          XXYY Parent Network

          Teen Network Listserv

          Sex Chromosome Anomaly 
                         (For adults with an extra sex chromosome) 

             SCA_HBT Listserv
                     (For homosexual, bisexual or transgendered only) 

List members sometimes post reports about research, but posting hard  scientific information is not the only purpose of the list. We exchange a lot of
information about every aspect of living with Klinefelter Syndrome. Because
this list is a support group, expect to see lots of supportive messages. If you
have a question, please post it.  No question is too big or too small. You will
probably receive answers from several people. Please remember, however,
that you still need to discuss your treatment with health care professionals

 

   
      Links on K.S. (Male) 

                         Klinefelter Association, New Zealand 

                         Klinefelters Syndrome Information-New Zealand 

                         Klinfelter Syndrome, Meet The People 

                           Klinefelter Syndrome & Associates 

                           The above are male. occurence ratio 1/500 to 1/1000 per
                           LIVE MALE births.

 

   
  Links on Intersexed--- 
                        frequencies of intersex conditions 

                         Intersex Society of North America 
                         -Prepare for an outspoken attitude.

                            Links             ,                      Faqs

                        Intersex Support Group International
                           Christian Intersex Support Group 

                        Intersex Support Groups

                        Hermaphroditism (same as intersexed) 
                           There are 8+ known genetic conditions and 43+ hormonal
                           disorders  that cause this to occur. 

                          1-Adrenal Hyperplasia

                           2. Androgen Insensitivity Syndrome

                           3. Progestin Induced Virilization 

                           4. Klinefelter syndrome

                           5. partial A.I.S.

                           6. Swyer's syndrome (XY gonadal dysgenesis) 

                           7. Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome 

                           8. gonadal tumors 
                               5 alpha-reductase deficiency 
                               Mullerian dysgenesis 
                               Mullerian duct aplasia 
                               vaginal atresia 

                           Intersexed Support Groups
Harry Benjamin Foundation-Gender Identity Resou

 

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